For years I told doctors about burning in my hands and feet, especially when it was hot outside. They kept saying it was growing pains, then anxiety, then "just one of those things." I remember being about twelve and crying in a cold bath because it was the only thing that helped. Nobody around me seemed to understand why heat was such a big deal. When I finally got diagnosed with Fabry disease at 24, reading about acroparesthesia was like someone had written down my life. I genuinely sat there thinking, "other people have this too?" The relief of having a word for it was almost as powerful as starting treatment. I still struggle to explain it to people who haven't experienced it. "Burning" doesn't quite capture it. Has anyone found a way to describe it that actually lands with friends or family?