Hello. It seems a little strange to be the first here, but then I guess that's part of being in a rare community... it takes a while to connect with others, and someone's got to be first. I was directed here via my own NCUK support group, with an invitation to share 'my story' which I hope will help with the task of improving access to a speedier diagnosis. It seems that most of us are diagnosed at stage 4 and that's sad. To anyone reading this - be well.